Friday , June 25 2021

AFM: After the son was paralyzed by the disease, Mom answered Polio survivors.



It was 2012 and her 1 year old son Lucian was suddenly paralyzed from her waist. While undergoing a California doctor's excellent medical care, she and her husband longed for emotional support and guidance that only a child's parents such as Lucian could receive.

But that was the problem. Lucian is one of the first children in the United States diagnosed with paralytic disease called acute flaccid myelitis (AFM).

Even on Facebook his mother could not find an intimate soul.

Then one day, assigning a random class gave Olivera a solution that proves that history is sometimes iterative.

Olivera was in the last semester of the nursing school and she was assigned to visit a support group that was meaningful to her life. She chose a support group for polio survivors because her son 's illness and polio were similar.

The support group members of the elderly who have been sick for a long time since being exterminated in the United States will change her life forever.

AFM and Polio: Similarities to One Person

In the late 1940s and early 1950s, polio was on average more than 35,000 people, making it one of the dreaded diseases of the 20th century according to the Centers for Disease Control and Prevention (CDC).

Polio and AFM are very similar. Experts think that both viruses are caused by the same kind of virus. Patients (mainly children) start to look like a cold or flu and become paralyzed.

Young survivors of rare diseases like polio are thriving.
According to the CDC, there have been 440 AFM cases in the United States in 46 states since 2014. The average age of patients this year is 5 years.
Thanks to the polio vaccine, according to the CDC, the United States has lost polio since 1979.

However, there is no cure or vaccine for AFM and health care workers have to know for themselves the best way to care for these children.

Some went back to polio to help the patient. Melissa Murray, an Oregon physiotherapist, cited an old medical journal article on polio and found out what kind of exercise he was doing to patient Bailey Sheehan who was diagnosed with AFM at age seven in 2014.

Murray said, "I was not sure I was nervous because I wanted to help, but I was a bit nervous, but this was an unknown territory." I did not think I would be back in time to read about polio. "

Bailey, currently 11, has a headache frequently and is weak on her right arm, but she can walk what her mother wrote about Murray's history research. "Melissa and her handmaid – I think the reason Bailey is walking is 100% Again, "Mikell Sheehan said.

Melissa Murray, a physical therapist at Bailey Sheehan, has studied Bailey to care for children with polio to help them recover from AFM.
Looking back on time to get medical wisdom from early illnesses like Murray and others have done with AFM, David Oshinsky, a professor of history at New York University, and "Polio: The Story of America" Award.

"It's great for me, I never saw that connection," he said.

Lessons from the past

When Olivera brought her son to the polio support group meeting at Thousand Oaks Community Center, she thought she might have made a mistake at first. These people are half a century older than their son – can they really help?

Then she saw one of the polio survivors sitting in an electric wheelchair grab the skin at the top of her thighs and pick a leg. Like bringing a puppy to your throat.

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It was a very specific movement familiar to Olivera because Lucius moved the legs.

She knew she was in the right place.

Polio survivors were the same.

Sherrill Boyd, aged 79, at the age of nine, said, "The boy got back to us and was like a déjà vu.

The survivor's advice was almost instantaneous, and some happened accidentally. Lucien grabbed her thigh and lifted her legs up on the table and Olivera went to school as a girl. Polio survivors laughed.

"They are stretching the legs, we do that, it was good!" Olivera recalls. "So now – break all etiquette rules!"

When Norma Puch saw Lucian and listened to his story, she reminded him of his story. She and Lucian are sick when I was a child. Puch was 18 months and Lucian was 11 months. Like Lucian, she wears a brace on the left leg from ankle to hip.

When I saw her, she remembered a painful event when she was a young woman working as a consultant for a Los Angeles construction company. One day she rested outside for a while. She was wearing a classic 70s mini skirt.

"Hey, cover it up." A man passing by shouted.

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He was referring to her leg brace.

"I was so angry, I thought I was stupid." I now remember the shame of being 65 years old. "I am ashamed because this metal object is on my leg."

She did not listen to the people who hated Olivera and told her not to think of Lucius as any other child.

"When I was a child, I could not walk as fast as other children, but I did not think of myself as a different person or compromise," said Pucci.

The advice made Olivera realize that she and her husband needed to treat Lucian like his three brothers.

"By that point, we had him in a bubble state. We always held him or were always next to him, but he could not help him at all," she remembers. "After the meeting, my husband and I talked, and we decided that we would not raise Lucy to this disability. We tried to save Lucian as a disability."

Today, at the age of seven, Lucian is a happy little boy with no signs of self-pity. He walks with braces and walkers or touches the floor. He does housework like a brother and sister, but in a modified way – for example, cleaning a room, pulling a toy out of the floor, putting it in a bag attached to a walker, and then putting it back on the shelf.

Not wanting to lose the wisdom of the old generation, Olivera remembers polio survivor Kurt Sipolski in his memoirs "Flowers are too early" and attends a board of directors for AFM children's parents. Sipolski advises parents of this new generation who regularly live with paralysis.

After the meeting, one of the survivors of polio raises Lucian a thick wool sock.

Socks became a souvenir to Olivera from the day she changed her life.

"That meeting reassured me and gave me such insight," she said. The polio survivors said that polio had a job without restricting its success, and that Lucian made it possible because of the family.


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